I’ve been a bit absent this week, however it’s for an excellent motive. Matt and I’ve been sidetracked with a really thrilling choice and buy these final couple of days, and it’s been troublesome to focus on the rest. This doesn’t have something to do with adorning, or DIY, or our home in any respect. It’s really rather more thrilling than that.
As most of , Matt was identified with a number of sclerosis two years after we bought married. So he’s been dwelling with this prognosis since 2004. For a number of years after that, it didn’t have an enormous impact on our lives, however about 5 years into our marriage, his well being began to noticeably decline.
For the final 13 years, Matt has needed to depend on the usage of a wheelchair to get round. However M.S. wreaks havoc on rather more than simply the usage of his legs. For Matt, the primary points are his general weak point and the sheer exhaustion that he lives with every day. Issues like sitting in a recliner — issues that almost all of us would do to calm down — simply put on him out. He has to go to mattress and lie down with a purpose to get better from the hours he spends in his recliner. However there are such a lot of methods it impacts him apart from the exhaustion. I gained’t go into particulars.
M.S. has been so limiting for Matt. For over a decade now, he hasn’t wished to go away the home or go locations. Quite a lot of that’s as a result of exhaustion, however he additionally offers with quite a lot of worry. House is a really safe place for him, and there aren’t any unknown variables when he’s dwelling. When he’s dwelling, we all know find out how to deal with each single difficulty that arises. However he’s at all times been so fearful that if he leaves the home, one thing will come up that he (or we) gained’t know find out how to deal with.
Fortunately, being dwelling hasn’t meant that he has to remain closed up throughout the partitions of our home. Now we have a home that sits on a one-acre lot, and Matt has an influence wheelchair that may simply traverse the terrain. He’s snug with that so long as the climate isn’t too sizzling, and he completely enjoys being exterior and with the ability to get pleasure from our massive piece of property. There’s actually not wherever on our property that his wheelchair can’t take him.
However with regards to really getting in a automobile and going someplace, he has by no means wished to even strive. Within the 8.5 years that we’ve lived in our home, I can depend on one hand the variety of occasions he’s left the home, and two of these have been in an ambulance heading to the hospital.
He’s simply had no curiosity in any respect in going locations. On a number of events over time, I’ve introduced up the opportunity of buying a wheelchair van so the he can get out and do issues. He was by no means . He was completely content material staying dwelling. The final decade has been very isolating for him, however it’s been by his personal alternative, and has largely been pushed by his worry. Once more, house is the place he feels snug and safe, and he has hardly ever (actually, by no means) wished to go away that consolation and safety, and has solely performed so when completely obligatory. And on these events when he does want to go away dwelling, and when it has been non-emergent (not medical associated), we now have simply rented a wheelchair van for transportation for the day.
A 12 months in the past, in 2021, Matt bought sick with influenza A, and needed to be taken to the hospital. When he was higher and it was time for him to come back dwelling, we didn’t have transportation for him. I attempted to discover a place that rents out wheelchair vans, however evidently there are not any such locations in Waco anymore. We advised the hospital that, and so they had no different concepts for us both. That left us with the one possibility of Matt being introduced dwelling in an ambulance, and since that ambulance journey was non-emergent, it value us about $1200 out of pocket for that journey from the hospital to our home. I used to be shocked that the hospital had no different choices, however they didn’t.
Two weeks in the past when Matt was within the hospital, we have been confronted with the identical dilemma. He had been taken to the hospital in an ambulance, however we had no transportation for him to get dwelling. Once more, there have been no locations that hire out wheelchair vans, so I used to be sure we must go along with the ambulance possibility once more, and pay the $1200 out of pocket once more.
However this time, we have been at a unique hospital — a greater hospital in so some ways, in my humble opinion. And this time, that they had an alternative choice. They advised us of an area service that transports non-ambulatory individuals for non-emergent functions. They will transport individuals in wheelchairs, and even on stretchers in the event that they’re extra snug that means. They will transport individuals domestically for medical appointments, or they will even transport individuals to different cities, and even different states, for appointments. So I referred to as, arrange a same-day appointment, and when he was discharged, they got here and picked him up in a bit mini van with all the obligatory wheelchair modifications and delivered him safely to our home. And so they did so for the very affordable worth of $91. That’s a far cry from the $1200 we had been cost final 12 months!
Properly, one thing about that experience in that little mini van with the handy again entry ramp flipped a swap in Matt’s thoughts. He LOVED that experience within the van. He LOVED the again entry ramp. He felt very safe and protected at the back of that van as he was pushed dwelling. And as soon as he bought dwelling and noticed how simple it was for me to get him out of the rear entry ramp, he was shocked. For the remainder of the day, he appeared so excited and energized about that van experience.
In order I’ve performed many occasions over time, I requested him that night time what he thought of the opportunity of us buying a wheelchair van since he had loved the experience earlier within the day a lot. I used to be absolutely anticipating the identical “no” that I’ve gotten from him the opposite occasions I’ve introduced up the thought. However this time was completely different. He appeared excited in regards to the concept. He began speaking in regards to the issues that he may get out and do.
I couldn’t imagine it! One van experience had actually flipped a swap in his thoughts. I can’t work out precisely why, however all I do know is that the distinction is his mindset has been an evening and day distinction. He was instantly excited in regards to the concept of buying a wheelchair van and getting again out into the world. It was actually wonderful to listen to the joy in his voice in regards to the prospects. And by the top of final week, he was about 95% certain that he wished us to get a van.
I began checked out completely different choices, and on Saturday, I contacted one of many two native sellers that promote wheelchair vans. My telephone name was linked to the nationwide workplace, and so they arrange an appointment for me to satisfy with somebody on the native workplace for this previous Wednesday. However on Monday, the person from the native workplace referred to as me to see precisely what we have been in search of, and after I advised him precisely what we wished (particularly with that rear ramp entry), he stated, “I simply bought a van in on Friday that matches that precise description!” He described it, and it sounded good, together with the worth!
On Tuesday, he introduced it over to our home in order that Matt may see it, and he completely liked it. After Matt bought in, and the man confirmed us find out how to use all the straps to safe Matt at the back of the van, Matt was so excited and advised the man, “We would like it!”
I’m simply so shocked, but additionally very excited, about this 180-degree change in Matt’s mindset. This may actually be a life-changing buy for him. So tomorrow, they are going to ship our new van to us, and this new chapter in Matt’s life will start. I couldn’t be extra excited for him!
Addicted 2 Adorning is the place I share my DIY and adorning journey as I transform and embellish the 1948 fixer higher that my husband, Matt, and I purchased in 2013. Matt has M.S. and is unable to do bodily work, so I do the vast majority of the work on the home on my own. You can learn more about me here.
I hope you’ll be a part of me on my DIY and adorning journey! If you wish to observe my initiatives and progress, you possibly can subscribe under and have every new put up delivered to your e mail inbox. That means you’ll by no means miss a factor!